It is difficult to be exact, but statistics for motor neurone disease tell us that:

  • it can affect any adult at any age but most people diagnosed with the disease are over the age of 40, with the highest incidence occurring between the ages of 50 and 70
  • a third of people die within a year and more than half within two years of diagnosis
  • the incidence or number of people who will develop MND each year is about two people in every 100,000
  • a person’s lifetime risk of developing MND is up to 1 in 300
  • around 35% of people with MND experience mild cognitive change, which can cause issues in executive functions such as planning, decision-making and language
  • a further 5-10% of people with MND show signs of frontotemporal dementia which results in more pronounced behavioural change
  • six people per day are diagnosed with MND in the UK
  • six people a day die in the UK, this is just under 2,200 per year.
  • it affects up to 5,000 adults in the UK at any one time
  • the prevalence or number of people living with MND at any one time is approximately seven in every 100,000